Brooklyn boy's fight against aggressive muscular dystrophy - Houston weather, traffic, news | FOX 26 | MyFoxHouston

Brooklyn boy's fight against aggressive muscular dystrophy

Posted: Updated:
NEW YORK (MYFOXNY) -

In July 2012, Pietro Scarso, 3, was diagnosed with Duchenne muscular dystrophy. Most children with this aggressive form of MD are in a wheelchair by age 10 and do not live beyond their teens.

There is no cure for DMD, but Pietro's parents, Dayna and Manni, are determined to extend their son's life.

The Bay Ridge, Brooklyn, family set up pietrosfight.org to raise awareness of DMD and fund research. DMD affects 35 children, mainly boys, per year.

Then they learned about an experimental new drug called Eteplirsen, which is in clinical trials. Manni Scarso said researchers initially were just trying to slow the progression of the disease but after 62 weeks they saw reversal.

The drug is not yet approved by the FDA. The drug maker is scheduled to go before the FDA in mid-February.

The Scarsos are hoping for an accelerated approval so they can start treating Pietro immediately. They hope this drug or any drug will be fast tracked to help save their little boy.

To learn more about DMD or to help Pietro, see:

http://www.pietrosfight.org

  • HealthMore>>

  • FDA's warning letter to maker of controversial supplement Craze

    FDA's warning letter to maker of controversial supplement Craze

    Tuesday, April 15 2014 10:38 PM EDT2014-04-16 02:38:33 GMT
    A report first surfaced last year about meth-like substances in Craze. The product was immediately pulled from the shelves of many major retailers, including Walmart. Now the federal government is taking its first action against the company behind the product. The supplement Craze was marketed as a product offering endless energy, a preworkout supplement popular with body builders. But a warning letter from the FDA confirms what Harvard scientists have previously alleged.
    A report first surfaced last year about meth-like substances in Craze. The product was immediately pulled from the shelves of many major retailers, including Walmart. Now the federal government is taking its first action against the company behind the product. The supplement Craze was marketed as a product offering endless energy, a preworkout supplement popular with body builders. But a warning letter from the FDA confirms what Harvard scientists have previously alleged.
  • Helping amputees achieve their potential

    Helping amputees achieve their potential

    Tuesday, April 15 2014 6:57 PM EDT2014-04-15 22:57:41 GMT

    A Step Ahead Prosthetics in Hicksville, Long Island, customizes prosthetics for people from all over the world. There are cosmetic ones made to mimic actual skin and lightweight "blades" made of carbon graphite designed for running. Aviva Drescher of "The Real Housewives of New York City" wears a prosthetic.

    A Step Ahead Prosthetics in Hicksville, Long Island, customizes prosthetics for people from all over the world. There are cosmetic ones made to mimic actual skin and lightweight "blades" made of carbon graphite designed for running. Aviva Drescher of "The Real Housewives of New York City" wears a prosthetic.

  • Blood test aims to predict breast cancer's return

    Blood test aims to predict breast cancer's return

    A new blood test may one day help predict the recurrence of breast cancer and also a woman's response to breast cancer treatment, researchers report.
    A new blood test may one day help predict the recurrence of breast cancer and also a woman's response to breast cancer treatment, researchers report.
Powered by WorldNow

KRIV FOX 26
4261 Southwest Freeway
Houston, TX 77027

Phone: (713) 479-2801
Fax: (713) 479-2859

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices