Updated: Friday, 19 Jun 2009, 12:16 PM CDT
Published : Friday, 19 Jun 2009, 10:55 AM CDT
HOUSTON - "Sometimes it hurt my feelings," remembers Johnathan Tucker.
At first, you may not think Johnathan and 10-year-old
Elizabeth Magee have much in common, but you would be wrong.
They are the same age, attend the same church, are both the
older sibling of a younger brother and are bound together by a
condition most people have never heard of.
"It's a very misunderstood disease. I remember times in our
past when we would go into a Chuck E. Cheese or a place like that,
people would look at us as if she had cancer," describes
Elizabeth's father, Jeff Magee.
Elizabeth has a form of Alopecia Areata which causes the hair
on her head to fall out.
"At one point it was very much, it was the whole top of my
head, but other times it'd be like two little circles or one little
patch above my ear" she describes.
Elizabeth's mother, Jennifer said, "We never know when she's
going to have hair loss, to what extent and will it grow back
because it cycles throughout her life."
Alopecia occurs when white blood cells view hair follicles as
the enemy and attack them.
For Tucker, it is a total loss of hair that will likely not
grow back.
"I felt like I was the only person on earth that had it and all
of a sudden then I heard someone at our church had it."
His condition surfaced in first grade. "Since then he has
lost the hair on his head and the rest of his body, so he doesn't
have eyebrows he has some eyelashes left but no hair on his arms
and legs," says his mother, Beverly Tucker.
These otherwise healthy, intelligent children take it in
stride.
Alopecia Areata may have taken away some hair follicles ...
but it has given them a wisdom beyond their years.
"You appreciate them for their insides, who they really are and
not just how they look on the outside" Elizabeth tells FOX 26
anchor Pattie Shieh.
It is a lesson their parents hope others will learn when the
International Alopecia Areata Conference comes to Houston in June.
As part of that 4-day event, the Tuckers and Magees are co-chairing
the Tortoise and Hair 5K and 1K run-walk in downtown Houston on
Saturday, June 27.
-- Register for Houston Tortoise and Hair 5K Run/1 Mile Walk:
http://houstonnaaf5k.wordpress.com/